Table of Contents

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Section 1 - Foundations of care

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1 - Development and epidemiology

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2 - The child's journey: Transition from health to ill-health

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3 - Communication

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4 - Ethics

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Section 2 - Child and family care

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5 - Through the creative lens of the artist: Society's perceptions of death in children

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6 - The spiritual life

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7 - Children's views of death

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8 - Psychological impact of life-limiting conditions on the child

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9 - Adolescents and young adults

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10 - Children expressing themselves

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11 - School

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12 - The power of their voices: Child and family assessment in pediatric palliative care

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13 - Impact of life-limiting illness on the family

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14 - After the child's death: Family care

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15 - Bereavement

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16 - Ritual and religion

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Section 3 - Symptom care

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17 - Symptoms in life-threatening illness: Overview and assessment

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18 - Using medications

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19 - Pain: An introduction

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20 - Pain: Assessment

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21 - Pain pharmacological management

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22 - Pain an integrative approach

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23 - Gastrointestinal symptoms

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24 - Feeding in palliative care

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25 - Depression, anxiety, anger and delirium

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26 - Neurological and neuromuscular symptoms

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27 - Respiratory symptoms

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28 - Skin symptoms

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29 - Haematological symptoms

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30 - HIV/AIDS

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31 - Complementary and alternative medicine

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32 - Symptom control at the end-of-life

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Section 4 - Delivery of care

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33 - Working as a team

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34 - Healthcare providers' responses to the death of a child

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35 - Place of care

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36 - Intensive care units

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37 - International aspects

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38 - Quality assurance

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39 - Education and training

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40 - Research

Back of Book

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Appendix: Drug doses

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Color Plates

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Figures